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Bennett Children's Foundation | More info...
Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.

Children's Medical Research Foundation | More info...
A non-profit foundation formed to raise and grant funds for research to find a cure for Sanfilippo Syndrome.

Ben's Dream | More info...
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.

Pediatric Database | More info...
Offers a definition, the epidemiology, pathogenesis, clinical features, investigation and management.

MPS III: Sanfilippo Syndrome | More info...
Information, including the causes, different forms, the inheritance and how the disorder progresses.

NORD: Sanfilippo Syndrome | More info...
Offers a list of synonyms, a general discussion and further resources.

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