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All Showcase Marfan Syndrome

List of Marfan Syndrome information, links and web resources.

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Marfan Syndrome All Showcase

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MFS Type 1 Fibrillin Gene | More info...
A comprehensive site including major resources listed as well as genetic information.

Slovak Marfan Association | More info...
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.

Central Ohio Marfan Support Group | More info...
Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.

International Federation of Marfan Syndrome Organizations | More info...
A global information center providing links to Organizations around the world.

Jeanette Navia's Marfan Life Website | More info...
Including lists of penpals and other ways to connect with the community as well as information about the Syndrome.

Marfan Syndrome | More info...
Article from eMedicine.

Marfan Syndrome Forum | More info...
Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.

The Mystery of Akhenaten: Genetics or Aesthetics? | More info...
A history of the pharoah along with theories applied to what he may have had, including Marfan's.

Living With Marfans | More info...
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.

Marfan Syndrome | More info...
Online chapter from The Merck Manual of Medical Information.

Marfan Syndrome | More info...
Online interactive user community.

Marfan Syndrome | More info...
Comprehensive guide to this connective tissue disease.

Marfan Syndrome: Does Diet Play a Role | More info...
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.

Marfan-List | More info...
Information about an e-mail mailing list. Also includes links to other online support groups.

Polish Marfan Association | More info...
General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.

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