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List of Alexander Disease information, links and web resources.

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Alexander Disease All Showcase



Dylan Samuel Freeman | More info...
Dylan has a very rare neurological disorder, Alexanders disease (Leukodystrophy). His story, his progress, and photographs.

Leukodystrophy | More info...
CHORUS document on the different types of Leukodystrophy. A little technical.

Aicardi-Goutieres Syndrome | More info...
News, descriptions, contacts, and other information concerning this leukodystrophy.

Devoted to Brianna | More info...
Medical experiences and terminology helpful for parents to understand and cope with genetic disorders. One little girl's story, concerning Canavan Leukodystrophy offers help and hope to many.

Alexander Disease | More info...
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

Call Again Soon | More info...
Directed at making life better for people affected by Leukodystrophy and those who know and love them.

Family Village / Library / Leukodystrophy | More info...
Resources on Adrenoleukodystrophy, Alexander Disease, Canavan Disease, Krabbes Disease, Metachromatic Leukodystrophy, and Refsum's Disease.

Leukodystrophy | More info...
A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

Leukodystrophy Hub | More info...
A brief definition followed by links to research articles, overviews and case reports.

MCW HealthLink - Alexander Disease | More info...
Information sheet from the Medical College of Wisconsin.

Undiagnosed Leukodystrophy | More info...
Lauren's homepage, a six year old from Melbourne, Australia with an as yet undiagnosed neurological condition thought to be genetic.

United Leukodystrophy Foundation | More info...
Nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in their health.

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World Headline, Health Business and Technology Update from BBC News

BMA head wins polyclinic contract
The UK's doctors' leader is part of a consortium that has won a contract to run one of the polyclinics that his organisation has campaigned against.
Test targets sport drugs cheats
Scientists find a way to identify a type of new drug which could be misused by athletes.
Everest trip helps critically ill
Blood oxygen levels recorded on a trip by medics to Everest could help the treatment of critically ill patients.
Brain-cooling devices developed
Scientists are developing new ways to cool heart attack and stroke victims' brains to protect them from damage.
GPs flu pandemic workload warning
GP surgeries have been told to prepare for seeing nearly 200 extra patients a week during the height of a flu pandemic.

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